Видео с ютуба National Organization For Rare Disorders

What is Frohlich Syndrome?

Rare Disease Community Resource Guide

Spinocerebellar Ataxia: Symptoms, Types & Genetic Inheritance

Trending in Rare Diseases: FDA Approvals, New Therapies and More

Episode #39 Sleep Issues in Children with Genetic Syndromes | ORDI India

Webinar on Health Financing & Social Health Protection for Rare Diseases

Voice of Healthcare | Bridging the Gaps in Rare Diseases

Countdown to Rare Disease Day 2026!

Bridging the Gaps in Rare Diseases | Virtual Session

Rare Diseases Update – December 4, 2025: SMA gene therapy OK’d, Regeneron–Tessera AATD pact and More

Stay Covered: Open Enrollment Essentials for Rare Disease Families

How a Journalist Revealed Failures in India’s Rare Disease Plan

Let's Talk Rare Diseases: Beyond the Diagnosis: Living with Stevens Johnson Syndrome |

Why Is Personalized Medicine Crucial For Rare Diseases? - The Disease Encyclopedia

S7 E11 I Rare disease advocacy and AI innovation in healthcare | Young Changemakers Podcast